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Mary Payton’s Miracle Foundation was formed in March of 2008 in honor of Mary Payton Vigil, a resident of Mandeville, Louisiana. Mary Payton is a beautiful five year old girl who was diagnosed at the end of January 2008 with Late Infantile Neuronal Ceroid Lipofuscinosis (LINCL), also referred to as Batten Disease (www.bdsra.org).
Mary Payton’s Miracle Foundation was formed by a group of people local to the Mandeville-Covington area. Some of our children have been in class with Mary Payton, some have known Joe and/or Nikki since childhood, and some of us had never met them until the foundation was formed. All of us are working together for one common cause: A cure for LINCL.
We have filed our Articles of Incorporation with the Sate of Louisiana and Mary Payton’s Miracle Foundation is compliant with the IRS rules and regulations of a 501c3 non-profit corporation. Federal Tax ID # 51-0672577. We have a mission statement, a vital mission, and the determination to accomplish our goals. We will help all children affected by LINCL.
Our Mission
The mission of this foundation is to help provide funding for treatment to families whose lives have drastically been altered due to this devastating disease. We will provide support for research in order to one day find a cure for LINCL so that no child will have to bear this burden. We envision a world where every child affectedby Batten Disease will receive treatment to relieve symptoms of the disease and potentially reverse it's devastating effects. We will raise national awareness of this disease through news media, word of mouth, email and whatever deemed necessary in order to increase funding for research and make it possible for miracles to occur. MPMF will raise funds and awareness through grants, fundraising events, public and private donations to ensure support for families who need assistance is available. We will provide grant opportunities for families whose lives have been unalterably affected by LINCL. Mary Payton's Miracle Foundation believes that providing support for research to occur will lead to an eventual cure for LINCL. As people become aware of the disease and share their resources, knowledge and skills, a network dedicated to the hope for a cure will grow. We are determined and will not give up.
Families in Need of Assistance
If you are a family with a child who suffers with LINCL and need support, please submit this assistance application form.
Officiers
Secretary
Ragan Cantrelle
ragan@marypaytonsmiracle.com
Board Members
Chris Faler
chris@marypaytonsmiracle.com
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