Message Hello from Ohio was posted by Angel Snyder, on 1/27/2009 7:48:31 PM.

I got a chance to look at your site- she is so beautiful! I have a close friend whose niece has a similar disorder - it is called "vanishing white matter disorder". Also as I mentioned our 11 year old has a history of seizures, he suffered a severe brain injury during birth resulting not only in seizures but also developmental delay. We haev been able to control his seizures ( he had 20 -30 a day) through intensive respiratory therapy and his diet. There are a coule of great organizations we have worked with - the Institutes for the achievement of human potential in Philadelphia. PA. And the National Association for Childhood Development in Ogden, UT. Their websites are IAHP.org and NACD.org - if you are interested in checking them out. They are good people who really love kids and are innovative in their treatments. Hope there is something there that can help your little girl. I know what it is like to find yourself in world you never knew existed...it is hard to explain to someone on the outside. Best wishes to your family - Angel Snyder (Dozier)

Post a Reply:
Name:
E-mail:
Subject:
Comments:
	Enter in the Code exactly as you see it before clicking the 'Submit' button.