Message Cherish was posted by Peggy, on 9/30/2008 8:24:44 PM.

Hi. My son Christopher lost his battle to Batten Disease (LINCL) at age 8. It will be 5 years this January. I know I do not have to tell you to cherish every minute with Mary. Hipefully options available today will provide the miracle all Batten parents are praying for. Best wishes and blessing to Mary and your entire family. The news coverage I saw online was great. thank you for helping to spread the word as you endure your battle with Batten disease. Bless you - Peggy DiCapua - New Jersey

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